People are still asking. This is a nasojejunal feeding tube. I have #gastroparesis caused by my #ehlersdanlossyndrome. This goes up my nose and down into my small intestine (jejunum). It allows me to “eat” (get adequate nutrition) without having to put anything into my severely dysfunctional stomach. The liquid nutrition is also a bit easier on my likewise impaired intestines. #tubie #gastroparesisawarness

Pre nap/rest strawberry ice bar. Soothes the throat pain from the tube. My new specialist is really good, never met a doctor who understands  #ehlersdanlossyndrome & co-occurring conditions & how they affect the GI system so well. Up to date on current information and was very thorough, knew right off on his own that there are multiple things going wrong that are responsible for my deterioration. Feeling very lucky, he says he sees a patient like me maybe once or twice a year. Now must rest. So much to do this week. <3

Pre nap/rest strawberry ice bar. Soothes the throat pain from the tube. My new specialist is really good, never met a doctor who understands #ehlersdanlossyndrome & co-occurring conditions & how they affect the GI system so well. Up to date on current information and was very thorough, knew right off on his own that there are multiple things going wrong that are responsible for my deterioration. Feeling very lucky, he says he sees a patient like me maybe once or twice a year. Now must rest. So much to do this week. <3