Anonymous asked: My neighbor just passed from EDS and he was taken really suddenly. He had just been accepted into the University of Illinois to study biochemical engineering. He was kind and the type of person who went out of his way to make sure everyone felt welcomed and loved. He was that special person you meet one time in your life. Because of him, I'm so thankful for pages like this getting awareness out there. If more awareness happens, maybe less people will die in excruciating pain the way he did.
I’m so sorry to hear about your neighbor’s death. :( It’s awful to hear such tragic ends happening to wonderful people. I hope more awareness does help us find the support many people need to cope with this painful disease. One of the goals that I have is that we can help one another.