In the linked fundraiser page I explain but I am an advocate for EDS awareness. EDS is a mutation in part of your DNA responsible for the formation and usage of collagen proteins. It can be inherited or a random mutation. More often it is inherited from one or sometimes both parents (like with me). Collagen proteins are the “glue” in ALL your body’s tissues. Your skin, muscles, ligaments, blood vessels, organs, brain, eyes, gums, EVERYTHING need it to be strong and to resist deformation (for example I have degenerative scoliosis because my ligaments and muscles cannot support my skeletal structure properly, or my GI system can’t function correctly because the tissue my organs are made out of are defective and so my organs don’t contract the way they should, they also stretch too much, or twist, shift or sag). The problems we EDSers experience can and often do affect our whole bodies. Though the most obvious signs & symptoms have to do with our unstable joints.
No support groups for EDS sex workers specifically but I’ve found a few other girls online scattered all over the world with EDS and we have formed friendships and an informal support group. The best thing to do is get online! Larkin Love is another performer with EDS too. There are a couple more on Twitter as well.
It hasn’t since I can’t afford it or risk having the few (very few) medical providers I’ve found who understand Ehlers Danlos Syndrome taken away from me.