So I’m kinda freaking out, & I’ve had a lot of asthma medication (stimulant) because I had an asthma attack. And I subluxated/dislocated a BUNCH of joints (upper left side of body) coughing violently and so I’m in too much pain to sleep. But also adrenalin surges from my #Dysautonomia and now the stress of being reminded my family was exposed to this shit, babies are still being born fucked up probably because of it and I didn’t even get any fucking superpowers.

So I’m kinda freaking out, & I’ve had a lot of asthma medication (stimulant) because I had an asthma attack. And I subluxated/dislocated a BUNCH of joints (upper left side of body) coughing violently and so I’m in too much pain to sleep. But also adrenalin surges from my #Dysautonomia and now the stress of being reminded my family was exposed to this shit, babies are still being born fucked up probably because of it and I didn’t even get any fucking superpowers.

So in the town my mother lived in as a child in 3 babies have been born with an uncommon (1 in 10 000) birth defect, all to mothers living on the same street in a span of a year or two. On the army base (and surrounding area, the forest the kids played in, yards etc) where the town is, in 1966 & 1967 Agent Orange and Agent Purple were sprayed. The military personnel (my grandfather) were told it was completely harmless. My grandfather has survived both malignant melanoma & colon cancer. I was born with a genetic syndrome (and likely my cousins on my mothers side & siblings have it too.) I also am friends with a girl who was born with the birth defect being reported now in that town (Moncton). Now she & I both have Ehlers Danlos Syndrome diagnoses. Now I have been told by my geneticist that I likely inherited my genetic mutations from both parents—which is a bit uncommon—dad very clearly has Hypermobility type #ehlersdanlos but mum & our family on that side have a very complex & confusing & numerous set of health problems. There was a class action lawsuit already, my family/grandfather was a part of it. It was dismissed for lack of evidence. I beg to differ…Story on the CBC news website if you want to go look.

So in the town my mother lived in as a child in 3 babies have been born with an uncommon (1 in 10 000) birth defect, all to mothers living on the same street in a span of a year or two. On the army base (and surrounding area, the forest the kids played in, yards etc) where the town is, in 1966 & 1967 Agent Orange and Agent Purple were sprayed. The military personnel (my grandfather) were told it was completely harmless. My grandfather has survived both malignant melanoma & colon cancer. I was born with a genetic syndrome (and likely my cousins on my mothers side & siblings have it too.) I also am friends with a girl who was born with the birth defect being reported now in that town (Moncton). Now she & I both have Ehlers Danlos Syndrome diagnoses. Now I have been told by my geneticist that I likely inherited my genetic mutations from both parents—which is a bit uncommon—dad very clearly has Hypermobility type #ehlersdanlos but mum & our family on that side have a very complex & confusing & numerous set of health problems. There was a class action lawsuit already, my family/grandfather was a part of it. It was dismissed for lack of evidence. I beg to differ…Story on the CBC news website if you want to go look.

Hey #ehlersdanlos peeps! You should all follow @ajschallenge! I’ve spoken to them a few times & they are lovely supportive people trying to raise awareness & fund research for Vascular Ehlers Danlos! If something ever happens to me—this is the charity I’d like donations made to. <3 Annabelle was DXed with VEDS at 3 years old! One of the youngest.

Hey #ehlersdanlos peeps! You should all follow @ajschallenge! I’ve spoken to them a few times & they are lovely supportive people trying to raise awareness & fund research for Vascular Ehlers Danlos! If something ever happens to me—this is the charity I’d like donations made to. <3 Annabelle was DXed with VEDS at 3 years old! One of the youngest.

Eden Alexander has a deadly infection that reached her heart &amp; lungs. She&#8217;s an adult performer. She was fundraising so she could get a nurse, medications, food, physical therapy. She is currently bedridden. Her fundraiser was shut down because she retweeted a friend offering nude photos as a reward for donating. WePay was monitoring her twitter (wtf?!!!) and cancelled her fundraiser. (Last I heard, though I hope they&#8217;ve rectified this, they hadn&#8217;t returned any of the donations to the contributors either.) Our community was outraged. Everyone spoke up. Do not use WePay&#8212;they are hypocrites&#8212;who started WePay to fund a bachelor party! A new fundraiser was started for Eden elsewhere and so far has been doing well. It is a sign of the massive failure of our medical system, our government and our society when nearly every ill person I know has to ask and rely on charity to survive and obtain medical care! #spoonie #ehlersdanlos #disability Thank you everyone who supports, helps and encourages me! I would not have kept on like this without you.

Eden Alexander has a deadly infection that reached her heart & lungs. She’s an adult performer. She was fundraising so she could get a nurse, medications, food, physical therapy. She is currently bedridden. Her fundraiser was shut down because she retweeted a friend offering nude photos as a reward for donating. WePay was monitoring her twitter (wtf?!!!) and cancelled her fundraiser. (Last I heard, though I hope they’ve rectified this, they hadn’t returned any of the donations to the contributors either.) Our community was outraged. Everyone spoke up. Do not use WePay—they are hypocrites—who started WePay to fund a bachelor party! A new fundraiser was started for Eden elsewhere and so far has been doing well. It is a sign of the massive failure of our medical system, our government and our society when nearly every ill person I know has to ask and rely on charity to survive and obtain medical care! #spoonie #ehlersdanlos #disability Thank you everyone who supports, helps and encourages me! I would not have kept on like this without you.

orneryjohn

karadin:

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Penn and Teller on Vaccinations - Video

I have a child with autism, and a child with autism is still better off than a child dying with a preventable disease.

I used to work teaching and caring for kids with autism and they are amazing. I have adult friends with autism. Different does not equal bad. And vaccinating kids doesn’t cause autism it only keeps all of us safer.